Journal Reviews

Ophthalmic Genetics cover picture

Patient reported outcomes in adolescents with inherited retinal diseases

4 October 2023 | | Retina / Uvea / Vitreous | PROM, Patient-reported outcomes, clinical trial, gene therapy, inherited retinal disease, pediatrics, retinal dystrophy

This was a two-centre validation study of two sets of patient reported outcome measures (PROMS) for adolescents (13-17- years-old) with inherited retinal diseases. The measures were the Michigan Retinal Degeneration Questionnaire (MRDQ) and the Michigan Vision-Related Anxiety Questionnaire (MVAQ). Both...